Academic Publications and Toolkits

Reports & Toolkits

Interactive Toolkit (providers only) – Trusts who have access to N3/HSCN network can access the study interactive toolkit (PHE Cancer Stats Platform) :

Movember Public Toolkit – available soon

UK Wide Report – click here.

Study Summary – click here.

Academic Papers

** To read user-friendly versions of academic papers see lay summaries. **

Factors Associated with Decision Regret in men with non-metastatic Prostate Cancer: Findings from the Life After Prostate Cancer Diagnosis Study. Psycho-Oncology, February 2020 in men diagnosed with stage 1 – 3 prostate cancer, involvement in treatment decision making was the strongest predictor of decision regret. Men who indicated they were ‘definitely’ involved in decision making reported the lowest risk of decision regret. To read the full paper click here.

Adjustment Strategies amongst black African and black Carribean men following treatment for Prostate Cancer: findings from the Life After Prostate Cancer Diagnosis Study. European Journal of Cancer Care, October 2019 – the incidence of prostate cancer within the UK is higher amongst men with Black African (BA) and Black Carribean (BC) backgrounds, compared to other ethnic groups, with 1 in 4 developing the condition compared to 1 in 8 white men. This paper describes the findings from interviews with BA and BC men across the UK, to see how prostate cancer has affected their lives and families and how they coped with the disease and treatment. To read the full paper click here.

Qualify of Life Among Symptomatic compared to PSA detected Prostate Cancer survivors. BMC Cancer October 2019prostate cancer survivors presenting symptomatically report poorer urinary, bowel, sexual and vitality/hormonal function than PSA-detected survivors. Differences between the two groups are not explained by socio-demographic characteristics, stage at diagnosis or treatment type received. Poorer general health prior to diagnosis may account for some of the differences reported. However, clinicians should be aware of potential differences in functional outcomes between these two groups of patients with men presenting with symptoms potentially needing additional aftercare after treatment for their prostate cancer. To read the full paper click here.  

Key Factors Associated with Social Distress after Prostate Cancer: results from the national cross-sectional Life After Prostate Cancer Diagnosis Survey. Cancer Epidemiology, June 2019 – most men following a diagnosis of prostate cancer are socially resilient. The key risk factors for social distress were non-cancer related, such as unemployment and multi-morbidities. However, analysis including men with and without prostate cancer from Northern Ireland indicated the diagnosis of prostate cancer increased the odds of reporting social distress by 1.5 times. To read the full paper click here.

Cancer Related Symptoms, Mental Well-being and Psychological Distress in men diagnosed with Prostate Cancer treated with Androgen Deprivation Therapy (ADT). Quality of Life Research, May 2019 – a minority of men treated with ADT report poor emotional well-being and/or psychological distress at a level to indicate possible serious mental illness. After controlling for a range of socio-demographic and clinical factors, both poor psychological outcomes were related to reporting clinically significant fatigue. Fatigue needs to be considered and assessed as part of the clinical encounter as severe levels are a possible indicator of psychological issues. To read the full paper click here.

Regional Variation in Quality of Survival Among Men with Prostate Cancer Across the UK. European Urology, May 2019 – prostate cancer survivors in England typically report better quality of survival than those from Scotland, Wales and Northern Ireland, with inequalities unrelated to treatment type or socio-demographic and clinical characteristics. To improve quality of survival, better understanding of regional clinical practices is required. To read the full paper click here.

The Psychological Impact of Being on a Monitoring Pathway for Early Stage Prostate Cancer: a UK wide mixed-methods study. Psycho-Oncology, May 2019 –most men who had been on active surveillance or watchful waiting for several years had adjusted well. Wellbeing was found to be high and was similar or better compared to men who had received active treatments. Men with poorer well-being were less able to accept and normalise the diagnosis, and described receiving insufficient information and support, and a lack of confidence in their health-care professionals. To read the full paper click here.

Quality of Life in Men Living with Advanced and Localised Prostate Cancer: A UK population-wide patient-reported outcome study of 30,000 men.  The Lancet Oncology, January 2019many men survive for a long time after having prostate cancer.  This paper reports the main findings from the study, what problems men have after treatment and what their life is like after cancer. To read the full paper click here.

‘Very difficult for an ordinary guy’: Factors influencing the quality of treatment decision-making amongst men diagnosed with localised and locally advanced prostate cancer: findings from a UK-wide mixed methods study. Patient Education & Counselling, December 2018 -the factors that influence treatment decision-making, which include both intra-personal preferences and inter-personal relationships with clinicians can sometimes conflict to complicate the decision-making process and challenging patient empowerment.  To read the full paper click here.

Treatment for erectile dysfunction among older men in Northern Ireland. International Journal of Clinical Research, September 2018Looks at men age 60 and over living in Northern Ireland.  46.5% of 2,597 survey respondents reported erectile dysfunction.  This is a likely consequence of treatment availability through the NHS in Northern Ireland, but also suggests that health care professionals need to engage more proactively with older men, discussing sexual health routinely and following up those treated for the condition. To read the full paper click here.

Factors Influencing Job Loss and Early Retirement in Working Men with Prostate Cancer. Journal of Cancer Survivorship, July 2018 – The impact of prostate cancer on employment.  Targeted support and engagement with prostate cancer survivors at risk of unemployment, including their families and employers, is needed. To read the full paper click here.

Prostate Cancer and the Impact on Couples: a qualitative metasynthesis. Supportive Care in Cancer, June 2018: Prostate Cancer affects both members of the dyad as individuals, as well as the couple’s relationship. How best to support couples and how to overcome difficulties in expressing their concerns to one another requires further consideration.  Healthcare professionals should endeavour to employ a couple-focused approach where appropriate.  To read the full paper click here.

Urinary, bowel and sexual health in older men: a general population study. BJU International, February 2018: Among men aged 60 and over living in Northern Ireland urinary, bowel or sexual dysfunction were reported by two out of five men, with all three conditions reported by one in fifty men. The most common of these was sexual dysfunction, which was reported by one third of men. To read the full paper click here.

A qualitative metasynthesis exploring the impact of prostate cancer and its management on younger, unpartnered and gay men. European Journal of Cancer Care, April 2017 These findings suggest that PCa can have a particular impact on the quality of life of younger, unpartnered and gay men. This has implications for the provision of tailored support and information to these potentially marginalised groups. To read the full paper click here.

Ethnicity and the prostate cancer experience: a qualitative study. Psycho-Oncology, July 2016:  a look at black and minority ethnic (BME) patients’ and partners experiences of prostate cancer by examining the findings of existing qualitative studies.  To read the full paper click here.